COMHAIRLE CONTAE ÁTHA CLIATH THEAS
SOUTH DUBLIN COUNTY COUNCIL

MEETING OF CLONDALKIN AREA COMMITTEE

Wednesday, October 17, 2018

MOTION NO. 11

MOTION: Councillor F. Timmons

Cathaoirleach's Business

"That this Committee calls on the Minister for Health, Simon Harris, to approve funding for a life-saving treatment for Irish Spinal Muscular Atrophy (SMA) patients.  Spinraza is currently reimbursed in 20 other countries, changing the lives of patients there, but not in Ireland. Spinraza could give those effected a better quality of life. Earlier this summer, the Minister for Health announced that Ireland would join Belgium, Netherlands, Luxembourg and Austria in the BeNeLuxA initiative to secure affordable and timely availability to new medicines for Irish patients. As of September 1st, Spinraza is available in all BeNeLuxA initiative countries apart from Ireland."

REPORT:

If the motion is approved, a letter will be issued to Minister Harris for his attention, and when a reply is received, the Committee will be notified accordingly.