COMHAIRLE CONTAE ÁTHA CLIATH THEAS
SOUTH DUBLIN COUNTY COUNCIL

South Dublin County Council Crest

MEETING OF SOUTH DUBLIN COUNTY COUNCIL

Monday, October 08, 2018

MOTION NO. 19

MOTION: Councillor F. Timmons

That this Cpuncil calls on the Minister for Health, Simon Harris, to approve funding for a life-saving treatment for Irish spinal muscular atrophy (SMA) patients.  Spinraza is currently reimbursed in 20 other countries, changing the lives of patients there, but not in Ireland. Spinraza could give those effected a better quality of life. Earlier this summer, the Minister for Health announced that Ireland would join Belgium, Netherlands, Luxembourg and Austria in the BeNeLuxA initiative to secure affordable and timely availability to new medicines for Irish patients. As of Septmeber 1st, Spinraza is available in all BeNeLuxA initiative countries apart from Ireland.

REPORT:

If this Motion is passed, a letter will issue to the relevant Minister and when a reply is received, it will be issued to the Members