COMHAIRLE CONTAE ÁTHA CLIATH THEAS
SOUTH DUBLIN COUNTY COUNCIL

MEETING OF CLONDALKIN AREA COMMITTEE

Wednesday, November 15, 2017

MOTION NO. 6

MOTION: Councillor F. Timmons

"That this committee agrees that in regards to Phenylketonuria (PKU), we need to make Kuvan available to those that need it and money should not be a reason to refuse it.  (Some Facts: 1) Ireland has one of the highest rates of PKU 2).  Kuvan was approved by EU regulatory agencies in 2009 for use in 20 European countries.  We commit to writing to the Minister for Health and asking that this drug Kuvan be at least trialled in Ireland so that the positive effects can be monitored and seen."

REPORT:

If the motion is passed, a letter will be issued to the Minister for Health  for his attention, and when a reply is received, the Committee will be notified accordingly.